Privacy Statement
The National Alliance for Eye and Vision Research (NAEVR) and the Alliance for Eye and Vision Research (AEVR) respect the privacy of our partners, collaborators, donors, and website visitors. We are committed to protecting personal information and complying with all applicable federal laws and the EU General Data Protection Regulation (GDPR).
This Privacy Statement explains how we collect, use, and safeguard information obtained through our websites and related services.
Information We Collect
NAEVR and AEVR collect information to effectively carry out our advocacy, education, communications, and partnership activities. Information is collected voluntarily and may include:
Partners and Engagement
NAEVR and AEVR do not have members; we work with partner organizations and individuals across research, patient advocacy, clinical care, industry, and government.
Information collected from partners is used to:
Partners may update or request removal of their information at any time by contacting us.
Use of Information
We use personal information to:
Where required under GDPR, we rely on consent, legitimate interest, or contractual necessity as the lawful basis for processing personal data.
Credit Card and Financial Information
NAEVR and AEVR do not store credit card information. All financial transactions are processed through secure, certified third-party payment processors. Any recurring or encrypted payment information is handled directly by those processors.
Cookies and Analytics
Our websites use cookies and IP addresses for:
Cookies help us understand how visitors use our site and allow certain features to function properly. Users may manage cookie preferences through their browser settings. Disabling cookies may limit some website functionality.
We may use third-party analytics tools (such as Google Analytics). Users can opt out of certain tracking features through browser or provider settings.
Managing Cookies
Most browsers allow users to control cookies through settings or preferences. If cookies are disabled, some site features (such as forms or login-based functions) may not work properly.
Disclosure to Third Parties
We do not sell or rent personal data. Information may be shared only when:
All third parties receiving data are required to use it solely for the intended purpose.
International Data Transfers
NAEVR and AEVR are based in the United States. Information collected from outside the U.S. may be transferred to and processed in the United States.
Where applicable, we rely on GDPR Article 49 derogations, including consent or contractual necessity, and implement reasonable safeguards to protect personal data.
Your Rights
Depending on your location, you may have the right to:
Requests may be submitted by contacting us using the information below.
Data Security and Retention
We use commercially reasonable administrative, technical, and physical safeguards to protect personal information. While no system can guarantee complete security, we take reasonable steps to prevent unauthorized access or disclosure.
Information is retained only as long as necessary to fulfill its intended purpose or comply with legal obligations.
External Links
Our websites may link to external sites. NAEVR and AEVR are not responsible for the content or privacy practices of third-party websites. We encourage users to review the privacy policies of those sites.
Updates to This Privacy Statement
This Privacy Statement may be updated periodically to reflect changes in law, technology, or organizational practices. Updates will be posted on our website. Continued use of the site constitutes acceptance of the revised policy.
Contact Information
If you have questions or concerns about this Privacy Statement or how your information is handled, please contact us:
National Alliance for Eye and Vision Research / Alliance for Eye and Vision Research
📧 [email protected]
Last updated: 2025
